Yesterday on May 10^th, the Al D. Rodriguez Liver Foundation (ADRLF) once again joined forces with New York City’s growing coalition of advocates devoted to fighting hepatitis. Crowds gathered at the steps of City Hall to raise awareness about the “silent epidemic” and promote community testing events across the city. The event took place to commemorate National Hepatitis Awareness Month, which is observed during the month of May each year, also coinciding with National Hispanic Hepatitis Awareness Day (May 15^th) and National Hepatitis Testing Day (May 19^th).

ADRLF’s Co-Founding Board Member, Dr. Carlos Ortiz shared that the rally was set on a beautiful, sunny day. “The energy was great. There were many posters supporting Hep Free NYC, and there were exciting speeches that rallied the enthusiastic crowd.”

Representatives from different health advocacy groups gathered to promote hepatitis awareness. (Photo Credit: Liz Maney)

“What I witnessed — that truly inspired me — was the sheer amount of people; even more so, this year’s variety of people,” Dr. Ortiz added. “And beyond that, the consistency and diligence of these attendees (now growing in number) who, every year, are fighting for this important cause: to end hepatitis. It’s why ADRLF remains committed to joining up with fellow advocates on this special day.”

Devoted to raising awareness and education, the event’s organizers provided a full recap of the morning, courtesy of their press release (excerpted below):

Speakers included the NYC Health Department’s Acting Deputy Commissioner of Disease Control Demetre Daskalakis, Councilmember Member Corey Johnson, Councilmember Margaret Chin, Hepatitis C Survivor Khalil Islam, members of the HOPE and Team HBV student initiatives, Bethsy Morales of the Hispanic Federation, and Daniel Leyva of the Latino Commission on AIDS.

Representatives and advocates from affected communities including city officials, patients, health workers, community workers, friends and families shared their stories today in hopes of encouraging action among New Yorkers to get tested and to demand better access to prevention and treatment.

Viral hepatitis disproportionately affects the Asian, African, African American, and Latino communities, as well as people who use drugs, formerly or currently incarcerated men and women, and the LGBTQ community. In New York City, a reported 146,500 people are infected with hepatitis C, and 100,000 people are infected with hepatitis B. Viral hepatitis is the leading cause of liver cancer in the United States, and those affected by hepatitis face strong barriers to care and treatment.

There is a vaccine available to prevent hepatitis B, and there are treatments to prevent serious liver disease and cancer for those already infected with either hepatitis B or hepatitis C.

“Our State is facing a serious viral hepatitis crisis that disproportionately affects minority communities. This event provides the opportunity to raise further awareness on this “silent epidemic” while we continue discussing the policies we need to implement in order to successfully combat and eliminate viral hepatitis in our City and our State,” said State Senator Gustavo Rivera. “I will continue working with the Hispanic Federation and fellow advocates to find legislative solutions that will efficiently combat this epidemic in order to improve our City and State’s public health outcomes.”

ADRLF Co-founder and Board Member Dr. Carlos Ortiz joined the rally with Bethsy Morales-Reid, Director of Community Health Engagement of the Hispanic Federation, and fellow liver health advocates. (Photo Credit: Liz Maney)

“Viral hepatitis has long affected some of the most vulnerable New Yorkers, including low-income and immigrant communities,” said Council Member Corey Johnson. “In order to fight back against it, we need to spread awareness and make healthcare accessible and culturally competent in new and innovative ways. That’s why the work of these organizations is so critically important. I thank all the participating organizations, as well as the NYC Department of Health for being active leaders in the fight to end viral hepatitis.”

“We are at a moment where science and medicine have shown us a way out of the epidemic of Hepatitis C,” said Dr. Demetre Daskalakis from the NYC Health Department. “The time is now for New York City to mobilize community, private, and government partners to address viral hepatitis and accelerate the implementation of better screening and access to life-saving treatments to people living with hepatitis B and C.  We need to test more, treat more, and support strategies to address the social drivers that will lead us to a ‘Hep-Free’ generation. Intensive navigation services and support for clinicians to effectively treat people with hepatitis C, supported by the NYC Health Department, are a key step in better identifying and curing hepatitis C.”

“We collectively invite you to join our mission to screen, vaccinate, and increase awareness around hepatitis and its alarming yet silent relationship to liver cancer,” said the founding board members of ADRLF. “To honor Al, we continue to amplify our focus on Latino (Spanish/Portuguese-speaking) populations, as well as art-based communities, vis-à-vis highlighting and providing education around hepatitis related issues such as:  awareness, stigma, treatment access, and mobilization. In fortifying support and engaging new allies, our voices together will continue to grow and spread this important message across small under-served communities and global borders, regardless of immigration status. To kick off National Hepatitis Month, we ask you to: Screen! Vaccinate! Don’t Hesitate!”

“During May’s observance of Hepatitis Awareness Month, we also mark National Hispanic Hepatitis Awareness Day (NHHAD),” said Daniel Leyva, Director of the Latino Religious Leadership Program of the Latino Commission on AIDS. “Both of these events highlight the importance of strengthening efforts to address hepatitis C virus infection in the United States and among Latinos respectively. While the prevalence of hepatitis C in the general population is 1.5%, it is estimated to be 2.6% in the Latino community. Some of our Latino communities are at much greater risk, such as our substance using and transgender communities. Today, we need to renew our commitment to promote HCV testing and to continue bringing awareness about life saving treatment to cure HCV. Only by working together, we will achieve a healthier NY for all.”

 “As opioid use among young people continues to increase, so does hepatitis C infection.  According to the CDC, the rate of hepatitis C among Hispanics increased 13.6% from 2013 to 2014. We are deeply concerned about these rates and the lack of accessible information and care. Hispanic Federation is working tirelessly to ensure that we eliminate the hepatitis C and B virus in our communities through advocacy, screening, vaccination, education, and treatment access,” said Bethsy Morales-Reid, Director of Community Health Engagement at the Hispanic Federation. 

In recognition of National Hepatitis Awareness Month, New York City community-based organizations will be hosting hepatitis screening events and educational workshops throughout the month of May. ADRLF encourages you to join this growing movement to end hepatitis!

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You know our ADRLF motto: Screen! Vaccinate! Don’t Hesitate!

Know more about Hepatitis Awareness Month here

Join upcoming hepatitis awareness activities in NYC here 

Learn more about National Hispanic Hepatitis Awareness Day here

Not even the winter cold could stop ADRLF, the Ryan Health Network and friends from coming together for a night of great music and a great cause at the ADRLF 2nd Karaoke Nights. Co-produced with ADRLF’s longstanding partners in health, the William F. Ryan Community Health Center, this year’s successful Valentine’s Day-themed fundraiser was held at the Ryan/Chelsea-Clinton Community Health Center in New York City. The benefit aimed to help ADRLF promote awareness of hepatitis and liver cancer, and provide free hepatitis screenings.

ADRLF’s 2nd Karaoke Nights – V-Day edition held at the Ryan Center in NYC.

“Tonight is a little atypical because usually we are doing more testing, less singing. But tonight, we are having fun and raising some money,” said William Murphy, Executive Director of Ryan/Chelsea-Clinton as he welcomed the excited guests. Professional singers, karaoke fanatics, and romantic crooners took center stage for a spectacle of vocal prowess to the tunes of “Happy,” “Party in the USA,” and Broadway’s “Wicked” — to name a few; with a thrilling range of romantic hits including a show-stopping salute to Adele’s 007 power ballad “Skyfall.”

“It is such a fitting night because Al loved to sing and everyone here is having a great time for an even greater cause,” shared Emmy-winning TV star, Carson Kressley – a founding member of the ADRLF Board, and the festive benefit’s magnetic host.

Special performances included: Drag Artist Extraordinaire Bootsie Lefaris, and up-and-coming recording artist, Cheyenne Elliott, the granddaughter of legendary recording artist and TV-host Dionne Warwick. “It’s an honor for me to be here in this event tonight, celebrating Al and the Foundation. It’s a very positive event and I love being a part of it. Singing is in my roots so I’m really proud to be here tonight,” said Cheyenne.

ADRLF Board Member, Dr Carlos Ortiz, Al’s sister Margarita Rodriguez-Duffy, Bootsie Lefaris and Cheyenne Elliott.

ADRLF Board Member and event host, Carson Kressley and guests take the stage.

The benefit also featured a silent auction of exciting items including: premium tickets for Broadway hits, “On the Town” and “The Visit,” and luxury treatments at D’Mai Spa. An original cupid-inspired drawing made especially for the benefit by renowned New York-based painter/illustrator, ALVARO, was also auctioned off, after much bidding excitement. Free hepatitis and HIV screenings were offered to guests throughout the night, in the adjacent medical offices, in keeping with ADRLF’s mission to help prevent liver diseases and promote overall wellness.

“The next time you do a physical [exam], ask your doctor to do a liver check. Have your liver checked because you may be surprised,” stressed Harriett D. Foy, Broadway star and an ADRLF Founding Board member. “Ask for a hepatitis test because they don’t offer it. You have to ask for it.”

Our friends from RYAN Health Network knew how to bring it on.

The successful fundraiser was thanks to an excellent organizing team and to the generous sponsors, including CHOCnyc which provided the evening’s savory chocolate confections.

Goodies from ChocNYC with dark chocolate varieties that are good for the liver.

“We’re always happy to help out with Ryan Health Center’s activities, especially with the Al D. Rodriguez Foundation,” said CHOCNYc’s Jemal Edwards. “It’s a wonderful organization and the work they are doing is very much needed in our community.” ADRLF would also like to thank the following for their support: Rick Miramontez and Andrew Esposito of O&M Co. Matt Ross of Matt Ross PR Rob Diamond of BroadwayWorld Industry Van Gogh Al D. Rodriguez Liver Foundation’s Karaoke Nights: Valentine’s Day Edition raised more than $8,200 in ticket sales and donations. All around, it was a successful night of philanthropy and song, in the name of love and liver health awareness.

The silent auction featured premiere Broadway show tickets and d’mai spa certificates.

ADRLF Board Members at the Karaoke Nights V-Day edition.

Photo credit: Monica Simoes